I'm Totally Afraid
I am 43 yrs old and was diagnosed with the her2 positive cancer a yeargo. I just finished my last herceptin chemo last week. I don't know what to expect the next years except I want to celebrate my last chemo but can't help thinking when and where is it going to come back. Is this normal? They don't do scans anymore just blood test, so how is this accurate? My friend's came back in her liver 2 weeks after her last chemo. I have been positive throughout this whole thing but can't stop thinking⦠read more
@A MyBCTeam Member - We all have that same worry no matter what our diagnosis was. I don't think we will ever have cancer far from our minds again just because it touched us personally. You have to let each case play out as it will because no two people are alike and their reactions to treatment and cancers are different as well. Your cancer may never come back or it could be back in three months. There is no way to predict with surety. I will pray that yours doesn't come back but when your thoughts start drifting into what if, get up and do something for yourself or someone else that occupies your mind so that thought cannot get in there. I am a strong believer in that we sometimes think ourselves into illness and positive thoughts are better for our health.Prayers and hugs for you.
My doctor suggested a new test at last weeks infusion called "guardian reveal" apparently it detects circulating tumors in DNA...this is supposed to help us keep a look out for where it might show up next.???? I'm supposed to think about it and I'm still doing research. My final maintenance infusion is the end of July. I'm thinking I want to know instead of the anxiety of the unknown. π
I finished chemo in November.... finishing radiation in 4 days.. maintenance infusions for the next 10 months... I started emotional support therapy last week for exactly this reason. I am having a really hard time wrapping my head around living with the unknown fact of reoccurrence. The doctors just don't know....it's in God's hands. As much as I want to put my faith and trust in God it's just not easy. I'm hoping the therapy helps. π
Boy do I know how you feel! Yesterday I went to my surgeons office for a follow up and I asked the same questions because I finished treatments Dec. 16th, 2013. So I asked, no CT Scand, no more PET Scans so how will we know? She said by all the questions they as will tell them if something is going on or not. It's still scary though. It does creep up in my mind but then I tell myself something that my kids gave me die Christmas with this saying on it, "Let your Faith be bigger than your Fear" and just saying that makes me feel south better. Otherwise we wouldn't be enjoying life if we let it consume us. Yesterday she said its been a long road and I told her other than the bilateral and the drains it's been a pretty easy one, nothing like I anticipated when I was first diagnosed. And she said that's why she tells patients not to compare themselves with anyone else. So please don't feel that since you're friends came back in two weeks yours may. Try to stay positive and live your life to the fullest, it's so very important. {Hugs}
I was 40 when I was diagnosed. We caught it early before it had spread. I had a lumpectomy with lymph nodes. I did not have to have chemo , but did have radiation and I currently take exemestane. I took arimidex for almost a year, and finally decided to try another AI due to the bone and muscle pain. I still have horrible joint and muscle pain from the exemestane. I also had a hysterectomy with tubes and ovaries removed as well. I think that us worrying about it coming g back is normal. I don't see how one couldn't! My oncologist was , in a way " getting on to me" for worrying so much just the other day. She said that I worry too much and that causes stress which helps cancer.. She told me that I cannot let it control my life. I'm just curious on how to not worry about it. I mean we here stories all the time about it coming back with all types of breast cancer patients. I wanted to ask if we weren't worried about it coming back, then why do I take this medicine for 5 maybe 10 years that makes me hurt so bad that I cannot do my job?! But I knew I would have been I there another hour if I had. It seems like I am experiencing every negative side effect possible from my aromatase inhibitors. I guess we just have to trust that our treatments are doing what they are ment to do. With my cancer, I alternate mri's and mammograms every six months. I honestly do not think I ever had any blood tests unless it was at my pre op appointments.
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