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Anyone Have DCIS Stage 0. What Did You Do?

A MyBCTeam Member asked a question 💭
Fremont, CA

Hi did anyone have DCIS stage 0. What did you do?

April 12, 2015
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A MyBCTeam Member

I was diagnosed with Invasive Ductal Cancer and DCIS on Valentine's Day and had a double mastectomy April 6.
For a number of reasons, I have opted for a double mastectomy. My decision to do a bilateral mastectomy was reinforced when my surgeon went over the pathology report with me. The pathology report also found a small, tiny ductal cancer insitu in my Left breast. So had I just addressed the cancer that was evident on the scans with a lumpectomy or single mastectomy, I would have been looking at this cancer diagnosis again as soon as it was showing up on the mammogram. I am lucky that my cancer was detected early and I have been spared radiation and chemo. I just never doubted my decision before or after the surgery. I think you have to do what you feel is right for you and will make you the happiest. God Bless you.

November 19, 2022
A MyBCTeam Member

I had DCIS stage 0 grade 3. I had a lumpectomy, then a second surgery to get clear margins. I had 20 sessions of radiation and was on tamoxifen for 15 months. I was initially told I would be on it for 5 years. After 15 months I was having bad side effects to the tamoxifen and was put on a two week med vacation. I switched cancer teams and my new oncologist said that he would monitor me closely but at this point the risks greatly outweighed any benefits I might receive. So I am done with all treatment. Now I am in the reconstruction phase. It’s a process.

November 23, 2024
A MyBCTeam Member

I had a lumpectomy. Did not need chemo or radiation. Refused Tamoxafin. That was 6 mos. ago. Due for follow up mammography.

April 30, 2015 (edited)
A MyBCTeam Member

@A MyBCTeam Member did you have DCIS also?

April 21, 2015
A MyBCTeam Member

I had Stage 0in 1994. Lumpectomy and radiation. Yearly checkups. In 2015 I was diagnosed with stage 3. Double mastectomy and chemo plus radiation ( same place as 1994). In 1994, I got 3 opinions-two agreed to lumpectomy and radiation one said to have a double mastectomy. I rolled the dice. It didn’t work out. You just have to do your research, ask questions and do the best you can.

February 15, 2024

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