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Does Anyone Here Have Chronic Neuropathy And It Effects Their Mobility Of Walking And Neuropathy In The Tips Of Fingers And Find It At Times

A MyBCTeam Member asked a question 💭
Paris, TX

And find it hard to hold things in your hands ?

January 20, 2024
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A MyBCTeam Member

I've had neuropathy since the 6th treatment w/Taxol back in '21. I still have it. I take 5,000 mcgs of Vit B12 daily (this is OTC) and feel that it helps stop the spread of the neuropathy. I've learned to live with it. I'm very careful when I walk, being sure to lift my feet off the floor with every step (don't walk as fast as I used to) and ask others to open packages for me - or I use scissors. It's annoying, but I really can't expect to have the same body I did when I was 21. Life is a coping experience; adapt to your changing situations.

July 19, 2024
A MyBCTeam Member

Yes,
My neuropathy pain really ramped up toward the end. My nails turns purplish and I didn’t have on any acrylic or gel nail tips. I still have neuropathy 4 months after chemo but it’s definitely manageable. I also bought the mittens and socks from Amazon. Not sure if they helped I tried anything to relieve the pain/itchiness. Be well Sis! You got this!💕

January 30, 2024
A MyBCTeam Member

Yes! I began taking Vitamin B-12 pills at a dose of 5,000 mcgs(micrograms) per day when I first came down with neuropathy, and it helped! Am still taking them, but am on a new chemo drug, carboplatin, and the neuropathy has mildly increased. To avoid falls, I concentrate on lifting my feel every time I walk, making sure I don't catch the toe of my shoe on a rug or a step, and I've become very careful around the stove. I take my time typing, writing checks and using my hands for chores. Better safe than sorry. Hope this helps! Take care!

January 26, 2024
A MyBCTeam Member

I developed slight neuropathy in my hands and feet during the last two of 12 weekly Pacitaxel treatments. Thought I'd improve once chemo ended mid November 2022 but instead I went steadily downhill. Spent 10 days in the hospital then three months in rehab center. It took two aides to even get me into a wheelchair. Peripheral neuropathy has been improving but nerves heal very slowly. My hands are functional but clumsy. I still need a walker to get around and wear orthotics on my feet and ankles. PT and OT have been very helpful. I take Alpha Lipoic Acid and use infared pads 20 minutes per day on my hands and feet. Am not yet ready to give up hope for further improvement!
Each day I try to focus on the positive and marvel at the abilities I have regained.

January 20, 2024 (edited)
A MyBCTeam Member

@A MyBCTeam Member My neuropathy in hands and feet (especially feet) got worse after chemo ended, I was super bummed when the oncologist said that since it was 6 months post chemo- this was my new normal. My feet were on fire with each step, and as the day went on, walking on the concrete floors at school would have me nearly in tears by the end of the day. My hands were numb- dropping things constantly, trigger finger episodes,- no burning, just pins and needles. BUT our bodies heal on their own timetables, and one day I could feel that I had two coffee filters!! The numbness was disappearing, slipping off bit by bit like a glove (now there is just some numbness at the tips of my fingers. The feet continued to heal as well- having the summer off really helped- and now just numbness at the tips of my toes. All of it complains more when I am outside in the cold for an extended period, but I just look at it as a reminder to have a grateful heart.

January 20, 2024

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