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For My Pink Sisters Who Are Triple Positive (er+, Pr+, Her2+) When Were You Diagnosed, What Stage And Grade, What Treatments Did You Receive

A MyBCTeam Member asked a question 💭
Bellingham, WA

And what maintenance medications are you currently on? If you were to redo or change any of the above treatments, what would it be?

July 27, 2024
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A MyBCTeam Member

I am triple positive as well, stage 1a, grade 3. Had a double mastectomy. I am currently doing once a week for 12 weeks of taxol/Herceptin, will then do just Herceptin for nine months every 3 weeks. After that will be tamoxifen for 5 years.

July 27, 2024 (edited)
A MyBCTeam Member

I had the same diagnosis and treatment as Melissa. I had a bilateral mastectomy. I was scheduled for 12 taxol treatments but took only 8 because I felt neuropathy in my hands. None of my care team seemed concerned that I didn’t finish all 12 taxol treatments. Taxol was not bad for me. I was tired for two or three days of my weekly treatments but I rested then could do things I needed to do on those days. I didn’t even know I was taking the Herceptin. I have been taking anastrozole for two years and have had no trouble. I hope the best for you. 🌸

July 27, 2024
A MyBCTeam Member

Stage 1grade 3, lumpectomy, node negative, 4 rounds of tpch, 4 rounds of taxotere, 18 rounds of radiation and now on Anastrozole 1 year of Phesgo, I actually wish I had decided to have breast removed only thing I would have changed

July 27, 2024 (edited)
A MyBCTeam Member

@A MyBCTeam Member, I'm sorry you're having side effects withe AIs. I too had problems with Letrizole and now am on exemestane. Still experiencing some joint pain esp to my right knee and foot but much less than with Letrizole. I pray that they come up with an alternative medication that will have less painful side effects for hormone receptor positive gals like us.

July 27, 2024
A MyBCTeam Member

@A MyBCTeam Member I am glad that you’ve had no issues with Anastrozole. Let’s win this battle together 👍

July 27, 2024

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