I See My Medical Oncologist On Wednesday. I Am Planning On Asking About Oncotype, Genetic Testing, Level Of Risk, Alternatives To Tamoxifen.
Am I missing anything? I had DCIS stage 1 grade 3. ER and PR +.
Not sure if you had looked at this information: https://www.breastcancer.org/screening-testing/...
What is the Oncotype DX Breast DCIS Score?
DCIS is the most common form of non-invasive breast cancer. DCIS usually is treated by surgically removing the cancer (lumpectomy in most cases). After surgery, hormonal therapy may be recommended if the DCIS is hormone receptor-positive (most are).
Radiation therapy may be recommended for some women. Doctors aren’t always sure which women will benefit from radiation therapy.
The Oncotype DX Breast DCIS Score is used:to help doctors figure out a woman’s risk of DCIS coming back (recurrence) and/or the risk of a new invasive cancer developing in the same breast how likely a woman is to benefit from radiation therapy after DCIS surgery
The results of the Oncotype DX Breast DCIS Score Test, combined with other features of the DCIS, can help you and your doctor make a more informed decision about whether or not you need radiation therapy.
Who is eligible for the Oncotype DX Breast DCIS Score Test?
You may be a candidate for the Oncotype DX Breast DCIS Score Test if: you’ve recently been diagnosed with DCIS
you’re having lumpectomy to remove the DCIS or have had a core biopsy
How does the Oncotype DX Breast DCIS Score Test work?
The Oncotype DX Breast DCIS Score Test analyzes the activity of 12 genes that can influence how likely the DCIS is to come back, either as another DCIS or as invasive breast cancer.
The Oncotype DX Breast DCIS Score Test assigns a Recurrence Score — a number between 0 and 100 — to the DCIS. You and your doctor can use the following ranges to interpret your results for DCIS:
Recurrence Score lower than 39: The DCIS has a low risk of recurrence. The benefit of radiation therapy is likely to be small and will not outweigh the risks of side effects.
Recurrence Score between 39 and 54: The DCIS has an intermediate risk of recurrence. It’s unclear whether the benefits of radiation therapy outweigh the risks of side effects.
Recurrence Score greater than 54: The DCIS has a high risk of recurrence, and the benefits of radiation therapy are likely to be greater than the risks of side effects.
You and your doctor will consider the Recurrence Score in combination with other factors, such as the size and grade of the DCIS and the number of hormone receptors the cancer cells have (many vs. few). Together, you can make a decision about whether or not you should have radiation therapy.
This information is provided by Breastcancer.org.
Nancy145, it's good you're asking about level of risk, please also consider asking about the BENEFITS of your treatment options, for your age group (considering your particular health history andy type of BC you have. IMHO it's good to find out the positives of the treatment paths you will be offered.
Nancy145, it sounds like you are being very proactive about your treatment, and that’s good. My oncotype was a 20, so I was fortunate not to have chemo, though because I have a score of 90 on the ER+, my oncologist wanted to put me on an AI and a drip. I told him I’d rather take Tamoxifen because I’ve taken it before in 2006 when I was first diagnosed with my first bout with cancer. I was clear for 17 years, but it returned. Two different types in both breasts. Ugh. Had a bilateral mastectomy in December. I tested negative for the BRACA gene. Was worried about my daughter. She’s 45, and she tested negative as well.
It’s good to research all factual information before making up your mind or going blindly into treatment. I didn’t want to go on the Aromatose Inhibitor or take the drip for my bones because of the negative side effects. My oncologist said the Tamoxifen would be fine to take. So, I take it in the morning, and though I do have some side effects, they’re mild and doable. Good luck! Michele.
I don’t think they do Onco type testing for DCIS, only for invasive breast cancer. Chemo does not kill DCIS, surgical resection is the cure.
Wishing you well!
@Michelle423
It is such great news that neither you nor your daughter have the BRACA gene. That is a blessing.
Sending super hugs.
Sue10
💚💚💚💚💜💜💜💜
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