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Real members of MyBCTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Why Won’t Oncologists Push For Pet Scans, Especially If You’ve Had 2 Types Of Cancers?

A MyBCTeam Member asked a question 💭
Norfolk, VA

Back in 2017 I was diagnosed with invasive carcinoma in my cervix. Likely due to HPV. Caught early, no chemo needed, cleared with an biopsy and since my husband and I wanted a kid, we were told to basically get on it bc it would come back. It did. After my son was born in 2018, same, early stage, no chemo, hysterectomy took care of it. Fast forward to my DCIS HER2+ in my right and precancerous cells in both, opted for a double mastectomy. Again, got lucky, no chemo. Clear margins after my… read more

October 13, 2024
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A MyBCTeam Member

You might want to check out the liquid biopsy Signatera test! This will pick up any cancer cells in your blood prior to even a Pet scan. Some insurance companies cover this test now. Otherwise it’s around $1500. Worth doing with your history.

October 13, 2024
A MyBCTeam Member

Because no one cares about prevention. They care about treatment. Plus PET scans are expensive so ins companies don’t want to pay for it. I think if you want a PET scan, say something is hurting, like your hip. Then they might do that. But remember, it’s also a lot of radiation. Not so great for your body. And PETs are not good for brain mets, you’d need an MRI for that. Just my 2 cents. Our world is less than perfect, so who really knows….

October 13, 2024
A MyBCTeam Member

It's understandable to feel concerned given your family history and personal experiences with cancer. Here are some points to consider regarding PET scans and their use in breast cancer monitoring:

- PET Scans and Their Use: PET scans are typically used when there is a suspicion of metastasis, such as involvement of the Show Full Answer

It's understandable to feel concerned given your family history and personal experiences with cancer. Here are some points to consider regarding PET scans and their use in breast cancer monitoring:

- PET Scans and Their Use: PET scans are typically used when there is a suspicion of metastasis, such as involvement of the liver, lungs, or bones. They use a small amount of radioactive sugar to detect "hot spots" where tumors may be present.

- Insurance and Guidelines: Insurance companies often follow specific guidelines for approving PET scans. These guidelines are based on evidence of their effectiveness in certain situations. Routine use of PET scans for surveillance in asymptomatic patients without specific indications may not be covered.

- Family History and Genetic Testing: Despite a family history of cancer, your negative BRCA 1 & 2 results and lack of other genetic markers might influence the decision-making process for additional scans. However, your oncologist can consider your family history and personal risk factors when recommending follow-up care.

- Monitoring and Follow-Up: Regular follow-ups with your doctor, including mammograms and other appropriate tests, are crucial. Your doctor will monitor for any signs of recurrence and can recommend further testing if needed.

- Advocacy and Second Opinions: If you feel that more in-depth scanning is necessary, discussing your concerns with your oncologist or seeking a second opinion might be beneficial. A second opinion can provide additional perspectives on your risk and the need for further testing.

Your proactive approach to health and regular monitoring are important steps in managing your risk.

October 13, 2024

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