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Real members of MyBCTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Has Anyone Experienced Spoting After Discontinuing Faslodex Shots That Suppress Estrogen?

A MyBCTeam Member asked a question πŸ’­
Franklin, TN

I'm 66 years old and am post menopausal. My cancer feeds off my estrogen. I was put on letrozole in the beginning of my treatment. I took it for 2years until it quit working. I was then put on Faslodex shots for a year and when my ibrance stopped working I was put on xeloda and discontinued the Faslodex shots. Since I'm off the Faslodex I have began to spot,like I'm going to start my period. I'm now wearing a thin pad. I told my oncologist and she said it wasn't possible because I've gone… read more

October 25, 2024
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A MyBCTeam Member

Yep, those damn side effects! I told my onco off after my first chemo because I suddenly had a massive bout of incontinence during my infusion and I was not prepared for it. By 2nd infusion I had prepared myself. It never happened again because he realized what it was and adjusted that IV med immediately. I had a complete hysterectomy 30+ years ago, that is the only time I have had an issue. I do an exercise on my Total Gym that seems to help me a lot it is a sort of plie. I call it the frog movement. I will be 80 in Jan... no pads needed.Guess I owe that to Chuck Norris! β˜ΊπŸ˜… The side effect of Taxol that I surprised my Onco and my Opthalmalogist with was an astigmatism in one eye. First showed up about 6 months after chemo ended. Neither one of them knew it was a SE until they researched it. I am like you, Barbara, I research everything. Sets my mind at rest! Do not get why medical community doesn't realize that forewarned is forearmed and peace of mind for us. Keep on fighting folks, we are rowing in the boat together.

October 26, 2024
A MyBCTeam Member

@A MyBCTeam Member last week my oncologist actually said she uses Dr. Google. She says she uses her knowledge but sometimes she will use Dr. Google to check something . I am sure she uses the sites I don't go on that use the terms I can't understand. I hate the NIH site, way too above my head.
Some women are just too afraid to research, its scares them. I use to talk about that friend I had who didn't research anything medical related. Not even her meds. She didn't want to know about side effects because that would scare her too much to take them. She would say I could research them but if I found something bad not to tell her. I research everything, I find learning about this stuff incredibly interesting, and I want to know all about the drugs I take. The bad stuff doesn't scare me. My doctor always appreciated how I research. My surgeon didn't . She hated the knowledge I threw it her. Like how dare I have knowledge not meant for me but its meant to her because she is a surgeon .

October 26, 2024
A MyBCTeam Member

I am sorry Sheryl, damn when it rains, it pours. It sounds more likely that its from the withdraw of the medication but to be on the safe feel content side I guess get it checked. With estrogen returning, it probably is hormonal just like we had hormonal changes with our periods before menopause. I would think your recent scans would have showed something.
I hope you are able to relax and enjoy your football weekend ! 🏈❀️πŸ₯°

October 26, 2024
A MyBCTeam Member

I love it (sarcastically of course) when you report something happening and a doctor says oh that can't be. I feel like saying you wanna see? What an idiot. I would ask your primary doctor if he can refer you to a gynecologist if you don't already have one. I don't know how these drugs work but obviously something is going on and like the AI I think you need to get someone to listen to you.
I'm sorry you are going through this. ❀️🌹

October 26, 2024
A MyBCTeam Member

Have to admit i got lucky with my oncologist. He does listen, is apparently fascinated by my research and uses it to help other patients. Again I do say that putting it in writing helps with my interactions with Drs. And I will say that the Dr at the memory clinic was not responding specifically to my husbands meds except as the combination of all of them. She was speaking to the correlation of drugs to the effect on specific areas of the brain. She also referred to the repeated anesthesia for surgeries and testings. I am sure y'all know how your surgeries have left you feeling a bit out of sync and perhaps muddle headed for a while. While most of that weirdness disipates, a tiny bit of cognitive function may be lost forever. I have a friend who has now had 7 hand surgeries, a hip repair, and surgery for an intestinal blockage. Our group of friends started noticing her memory decline after her 4th hand surgery. Then after a while, she would recoup a bit, but never all of her cognitive abilities. That plus meds is what the Memory Dr was referring to. It took me 4 yrs after chemo to return to writing. It was because I could not focus or concentrate for more than a few moments at a time. My writing was stilted and incomplete. Now I am no longer able to write but in short story version and it takes me much longer to do those stories. It is what we put up with to be able too fight the battle and live one more day... I wish you all well and send hopes for a definitive solution to the scourge called cancer in our lifetimes. Keep rowing that boat ladies, I am sitting on the same seat rowing away.

November 2, 2024

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