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I’m Only 5 Weeks Into My Chemo And Immunotherapy For Tnbc But I Am Quitting Chemo, Side Effects On My Severe Bowel Adhesions. Am I Wrong?

A MyBCTeam Member asked a question 💭
Park Falls, WI
December 22, 2024
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A MyBCTeam Member

Hi Linda no one wants to say if ending chemo is right or wrong. You have to be comfortable with your decision and since you are asking if you are wrong, perhaps you aren't sure if the decision to quit is right for you.
I am sure you are aware that TNBC can be more aggressive. You didn't mention stage/grade in your story which can be more helpful.
You could go ahead with surgery first and see what is found out and that might make it easier for you to make that decision to have more chemo or not.

December 22, 2024
A MyBCTeam Member

Hi Mona, I went ahead with mastectomy and 2 lymph nodes removed and lymph nodes and breast tissue showed no sign of cancer. Will be meeting back with oncologist on Feb 17.

6 days ago
A MyBCTeam Member

Linda, I am sorry you are having issues with your chemo protocol. I have Crohns and really worried whether chemo would throw me out of remission. My Crohns was severe enough that I had to have a bowel resection done while still in my 20's.

TNBC is known to be aggressive. Chemo is meant to stop the spread, and possibly shrink the tumors you have. It may even take care of any cells trying to hide out in your lymph nodes.

When they do surgery they will remove (usually 3 to start) lymph nodes and test for cancer cells. If they show they are positive for cancer, the surgeon will continue to remove lymph nodes for additional testing, until hopefully, the ones removed show no cancer.

Doing chemo first should help in making sure your surgery is less invasive. The less invasive, the more likely you will have complication free healing.

If the chemo is challenging- please let your team know what the issues are. With that info, they can adjust your dosages, or schedule. or even substitute a different drug in hopes of making it easier for you. They may also offer prescription meds to offset the more common side effects. Reach out here too, we will share whatever tips and tricks got us through.

The decision is ultimately yours- your body, your decisions. Just please, consider everything- including a second opinion from another oncologist if that would help answer questions about your options. Make sure your gastroenterologist has some input in your team's recommendations. They can even add your gastro to those that they send copies of all your images, lab work, tests, and notes. (I also have my PCP on the list to get all the info)

Keeping you in prayers as you navigate through all the info to make the decisions that are right for you. Hugs!

December 22, 2024
A MyBCTeam Member

I had double mastectomy with 3 lymph nodes cancerous. My surgeon took out 9 to make sure. Had 4 rounds of chemo and 28 radiation sessions last Feb 12th 2024
This December 16th had my reconstructive surgeon put in my permanent gummies and now healing . They look great. Cant do much of anything but worth it. My last step will be having 3D tattoos to make me feel whole again.

6 days ago
A MyBCTeam Member

Talk to your oncologist

7 days ago

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