I had a double mastectomy in June. Only right breast, I’m her2+. It was the right decision for me. It’s aggressive so I went radical with reconstruction so hopefully I’ll never deal with this again. Best of luck! Hugs

I don't have the braca gene but I had 2 lumps in one breast and cancer found in lymph nodes.The one lump, stage 3 that was herceptin positive responded really well to chemo, the other lump stage 1 didn't and stayed the same size. I had no other option other than a mastectomy and axillary node clearance. It's a week since my op and while my arm hurts, I have a lot more mobility and an easier recovery with a single mastectomy. For me I have more symptoms from the lymph node clearance. I'd find out from your doctor your risks of reoccurence should you treat only the one breast. I have been 'uncomfortable' but I am able to sleep and in 3 weeks time hope to be able to join friends for a spa weekend. I have ordered a swimsuit with boob for the pocket. Whether I am able to swim will be another question but after 8 months of treatment I feel I am on my way to getting my life back. Cancercreoccurrence is always on the cards though.

I had a lumpectomy in July 2023 that was discovered in Dec 2022 but looking back at symptoms it had already metastasized probably a year before. So, it skipped the other breast and one out 4 sentinel nodes were positive. So, instead of going to my other breast and all 4 sentinel nodes it went to my sternum, then on my hip. I had a mammogram 2 months ago and both breasts were still clear, but a new lesion was found on my spine. So, having breasts didn't make a difference. They say mastectomy doesn't offer any more protection than lumpectomy but my point, having breast didn't protect me from it going somewhere else.
Now, you do have TNBC which is a can be aggressive and you carry those 2 genes so I think a double mastectomy would probably be more beneficial for you.

I'm on day 10 of double masectomy recovery. My oncologist suggested a lumpectomy would do the trick for my stage 1b TNBC. I opted for the big surgery for piece of mind and do not regret it. No cancer was found in 3 lymph nodes removed. My surgeon was amazing and very skilled. I am on my way to ring the bell next week and my health, diet, exercise and mental toughness are all on me now. I'm taking this seriously as I never want to repeat this journey

I had the same thoughts as you! TNBC stage1, grade 3, 2018.
I agonized over this decision.
My knee jerk reaction was double mastectomy. My surgeon said it wasn’t necessary, as I was stage 1, and tested genetically negative for any known breast cancer mutations. She did suggest I do research, maybe get a second opinion. If I still wanted the mastectomies, she would do it. My second opinion said the same thing.
Once I made my decision, I let go, and accepted my choice.
You have to do you. Wishing peace and acceptance for you!