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For Those Of You Who Have/had Neuropathy Due To Chemo Treatments, I’d Like To Know If It Ever Went Away And If It Did, How Long Did It Take?

A MyBCTeam Member asked a question 💭
Madison, WI
1 day ago
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A MyBCTeam Member

It took a little more than 6 months from the end of active treatment (instead of just the end of chemo), to start seeing real improvement. I thought it should have been sooner, but apparently, my targeted drug, Herceptin, also carries some risk of neuropathy (another fun fact the oncologist did not share).

1 day ago
A MyBCTeam Member

Hi Donna,
After 4 years off from chemotherapy I still have peripheral neuropathy in my feet but bearable. My doctor put me on Gabapentin 100 mg twice a day. I also take Magnesium 400 mg once a day.
Hope that helps you.

1 day ago
A MyBCTeam Member

Well, during chemo, it started with numbness, then the pin pricking like you had suddenly put weigh on a food that had fallen asleep, then absolute burning! I had started chemo in January and finished in June, I was hoping it would start getting better, but it kept getting worse, I finished Herceptin the following January- by June, the burning was so bad I really thought I was going to have to quit my job. Walking on the concrete floors all day was complete torture. I decided, I would not resign, just take it easy off the concrete floors for summer break, and make the decision to stay or go by Christmas. When I came back in August, 7 months after finishing treatment, it still burned- just not as intense, and bit by bit it worked itself backwards, from burning, to pins, to numbness. Now, 5 years post treatment, I have some numbness in the tips of my fingers and toes. Cold weather will bring the pins and needles back, but it clears up after I get warm again (usually within an hour).
All in all- more an annoyance than anything else now! Hugs!

1 day ago
A MyBCTeam Member

So what do you mean by improvement? Feeling good? Ya, we gotta be our own advocates and STUDY, STUDY, STUDY! Yet they say don't read what's online...Hm..Glad you feel, see improvement!!..💖

1 day ago
A MyBCTeam Member

I should’ve mentioned that it will be two years in March that my neuropathy started after chemo. I am fortunate that I do not have pain with it, just numbness.

1 day ago

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