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Neuropathy From Tacol And Ice Mits

A MyBCTeam Member asked a question 💭
Avon Lake, OH

After my second Taxol, I experienced painful neuropathy. it did disappear in 4-5 days. yesterday at chemo I asked about the ice mits and they acted like they had never heard of them. How many people have used ice mits and did you have to buy and bring your own?

November 8, 2016
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A MyBCTeam Member

I had severe neuropathy with the 1st and 2nd treatment of Taxol/Carboplatin. They weren't going to give me my 3rd and last dose, but I talked them into it. I had never heard of ice mitts or ice caps at that time. I'm almost 4 yrs out and have permanent neuropathy in my feet and hands. I can't feel things well with my fingers, can't open jars, have less strength in my hands. I'm a Southern girl and I don't wear shoes in my house. 3 times I've had glass shards in my feet that I didn't know we're there until I found them while bathing my feet. Every now and then I have a sensation in one of my feet like being stung by a giant wasp or hornet. My hands and feet were very painful during treatment, but have gotten much better over the years. Now they are mostly just numb. I tried Gabapentin also, but it was like taking a street drug. I couldn't focus, I put dirty clothes in the dryer, left the refridgerator door wide open, left the water running in my kitchen sink, etc. Needless to say, I stopped taking it. When they bother me now I use Voltaren Cream and it helps . Hope you find some mitts. 💗💗💗

November 13, 2016
A MyBCTeam Member

I have my appt with my ONC this morning and I am going to ask. The neuropathy is now everyday in both hands and feet and it usually starts mid afternoon until bedtime. I am finding it hard to use my fingers for anything., I have been massaging hands and feet with emu oil with Frankenscence and lavender added . I do wear arthritis compression gloves too which helps a little,

November 14, 2016
A MyBCTeam Member

@A MyBCTeam Member I have never heard of these ice mits. What exactly are they? Too late for me now but if I know someone who may need them I can tell them. Hopefully it won't be me again. The way I feel now I don't think I could do it again. I'm in such a depression I can't even make it to work in the morning. And no psychiatrists can see me till the end of November beginning of December. All I do is cry and cry. You know I hit the ground running when I was diagnosed now I can't seem to get myself together.

November 8, 2016
A MyBCTeam Member

@A MyBCTeam Member I have compression gloves I use for my arthritis in the winter.

November 9, 2016
A MyBCTeam Member

@A MyBCTeam Member Can anything be done?

November 9, 2016

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