I am on Xeloda also nothing else has worked ,also stage 4. I have Blue cross/shield and pay 10.00 a month. So far side effects have been red/sore hands feet and a bit of nausea. Starting third month.

They are changing you from Kadcyla. I haven't been told about those drugs yet...but have been having lots of problems on Kadcyla so we may soon be discussing other drugs...I hope you get help with Xeloda...I am sorry you are having to deal with this...

I fainted when my cancer went to my brain (right cerebellum, 2 craniomities - - all breast cancer, every one of my surgeries

Uhm. I was taking Xeloda in a trial (Xeloda & Neratinib). I was pulled from the trial because by brain tumor, which was a breast cancer tumor both times, yes two craniomities.

I have been on Tykerb since my mets are now in my right cerebellum, which has been approximately 2 years.
My cancer returned to my right breast and metasized to my right cerebellum.

I know for a fact that Tykerb is EXPENSIVE ($5500.00) billed to my insurance company. I have a copay assistance company pay my copay ($90.00) a month thru I believe CancerCare in New York.

Its my belief that PANF also pays for Tykerb copay.

www.cancercare.org › Our Services › Financial Assistance
866-55-COPAY

Patient Access Network Foundation
www.panfoundation.org

I just got reviewed by my neurosurgeon who did my craniomities. My Brain MRIs have been moved to 4 month --- because its only a year since my last craniomity---(2013 and 2016). I was getting MRIs every 2 months, such a blessing.

Good Luck

ps: you can also do a google search:
type (medication) and copay assistance
(to find out if its covered)

Thanks @A MyBCTeam Member - I went there but too hard to read on the phone. I'll have hubby check it on his desktop later!

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