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Real members of MyBCTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Does Everyone Have A Treatment With Bi-lateral Mastectomy?

A MyBCTeam Member asked a question 💭
Detroit, MI

I see that many people on this site mention various treatments after bi-lateral mastectomy, but my surgeon said I shouldn't need it with the mastectomy unless they find something in the chest wall. Has anyone else been told this?

November 18, 2018
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A MyBCTeam Member

I didn’t have treatment. I was stage 1 Invasive ductal carcinoma. Bilateral mastectomy.

November 19, 2018
A MyBCTeam Member

I understand how you feel. I had a BMX when I didn’t get clear margins after two surgeries on my right side. My surgeon said this only happens to one 1% of her patients. I’m 52 as well and decided to go flat, I didn’t want additional surgeries as it is always more than one. DIEP flap - too tough of a recovery for me. And I didn’t want implants due to risk issues with the chemicals or having to change them every 10 years. I felt great 3 weeks post BMX surgery....it is a much easier recovery. It was a great decision for me. I’m now done 4 weeks out.

I can’t imagine you’d have chemo with DCIS and hopefully no radiation. I hope it goes well for you.

November 18, 2018 (edited)
A MyBCTeam Member

I didn’t have any treatment. I was Stage 1 Invasive Lobular Carcinoma and my BMX caught all of the cancer.

November 21, 2018
A MyBCTeam Member

It depends on many factors of your diagnosis. Ask your oncologist what determined his/her opinion. If you are in doubt, seek a second opinion at at different institution. We must all educate ourselves on this disease and ask questions. It looks like you are ER neg , PR positive, which may be why.

I had negative nodes too and had residual DCIS removed in a BMX after two failed lumpectomies which removed a 1.2cm tumor, IDC. I did chemo first based on my Oncotype of 21. I just started Tamoxifen and an ER/PR positive and HER2 negative.

November 18, 2018 (edited)
A MyBCTeam Member

I had a bilateral mastectomy for DCIS in right breast, No lymph node involvement. ER/PR positive. After BMX I was told no treatment also b/c there was no node involvement.

November 18, 2018

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