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Real members of MyBCTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Breast Cancer And DES

A MyBCTeam Member asked a question 💭
Tucson, AZ

Looking for info on breast cancer treatment related to DES babies. My moms came back in the middle of chemo and I just had a double mastectomy in April now taking anastrozole when I ask if it works against DES cancer they look at me like I’m an alien

October 1, 2019
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A MyBCTeam Member

I’ll bet the oncology nurses don’t know what you’re talking about!

Diethylstilbestrol (DES) is a synthetic form of the female hormone estrogen. It was prescribed to pregnant women between 1940 and 1971 to prevent miscarriage, premature labor and related complications of pregnancy.

If you were exposed to the drug ‘in utero ‘, your mom took DES when she was pregnant with you and their are associated risks for you.

http://www.cancer.gov/cancertopics/factsheet/Ri...

October 2, 2019
A MyBCTeam Member

@A MyBCTeam Member Years ago, a doctor knew everything about the patient. Not many specialists so our family doc delivered babies, performed surgery and he even made a house call to check up on me after removing my tonsils. Those were the old days ... docs knew it all ... patients couldn’t imagine questioning them!

October 9, 2019
A MyBCTeam Member

My mother was given DES while pregnant with me. I had difficulty conceiving then miscarried first baby and now had TNBC last year. My daughter and my sister were both born with only one ovary…pretty rare…and both had lots of trouble conceiving. Now my daughter is in early menopause at the age of 45. I had genetic testing and they found no genetic markers. All of the problems we’ve had are problems associated with DES.

March 15, 2024
A MyBCTeam Member

No one legally wants to speak about the correlation between DES and BC. personally would love to know more.

January 16, 2024
A MyBCTeam Member

The military used it and it seems to have been more common from Michigan east. There was a class action lawsuit in the early 80’s. My daughter (a DES granddaughter) seems to have been hit with every terrible side effect from it

October 8, 2019

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